dc.contributor.author | Tarberg, Anett Skorpen | |
dc.contributor.author | Kvangarsnes, Marit | |
dc.contributor.author | Hole, Torstein | |
dc.contributor.author | Thronæs, Morten | |
dc.contributor.author | Madssen, Torfinn Støve | |
dc.contributor.author | Landstad, Bodil | |
dc.date.accessioned | 2019-09-26T07:42:42Z | |
dc.date.available | 2019-09-26T07:42:42Z | |
dc.date.created | 2019-08-14T14:18:38Z | |
dc.date.issued | 2019 | |
dc.identifier.citation | Nursing Open. 2019, 1-9. | nb_NO |
dc.identifier.issn | 2054-1058 | |
dc.identifier.uri | http://hdl.handle.net/11250/2618864 | |
dc.description.abstract | Aim
To explore how family caregivers experience involvement in palliative care.
Design
A qualitative design with a narrative approach was used.
Methods
Purposive sampling and narrative interviews were conducted. Eleven bereaved family caregivers for patients with cancer receiving palliative care were interviewed in Mid‐Norway between November 2016–May 2017.
Results
We identified four themes related to family caregivers' experiences of involvement in the early, middle, terminal and bereavement phases of palliative care: (a) limited involvement in the early phase; (b) emphasis on patient‐centred care in the middle phase; (c) lack of preparation for the dying phase; and (d) lack of systematic follow‐up after death. Family caregivers experienced low level of involvement throughout the palliative pathway.
Conclusion
The involvement of family caregivers in palliative care may not be proportional to their responsibilities. The needs of family caregivers should be addressed in nursing education to give nurses competence to support family caregivers in providing home‐based care. | nb_NO |
dc.language.iso | eng | nb_NO |
dc.publisher | Wiley | nb_NO |
dc.rights | Navngivelse 4.0 Internasjonal | * |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/deed.no | * |
dc.subject | Omsorgsgivere | nb_NO |
dc.subject | Caregivers | nb_NO |
dc.subject | Palliasjon | nb_NO |
dc.subject | Palliative care | nb_NO |
dc.subject | Kreft | nb_NO |
dc.subject | Cancer | nb_NO |
dc.subject | Primær helsetjenesten | nb_NO |
dc.subject | Primary health care | nb_NO |
dc.title | Silent voices: Family caregivers' narratives of involvement in palliative care | nb_NO |
dc.type | Journal article | nb_NO |
dc.type | Peer reviewed | nb_NO |
dc.description.version | publishedVersion | nb_NO |
dc.subject.nsi | VDP::Sykepleievitenskap: 808 | nb_NO |
dc.subject.nsi | VDP::Nursing science: 808 | nb_NO |
dc.source.pagenumber | 1-9 | nb_NO |
dc.source.journal | Nursing Open | nb_NO |
dc.identifier.doi | 10.1002/nop2.344 | |
dc.identifier.cristin | 1715932 | |
dc.description.localcode | This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. © 2019 The Authors | nb_NO |
cristin.unitcode | 194,65,80,0 | |
cristin.unitcode | 194,65,25,0 | |
cristin.unitcode | 194,65,15,0 | |
cristin.unitcode | 1920,12,0,0 | |
cristin.unitname | Institutt for helsevitenskap Ålesund | |
cristin.unitname | Institutt for sirkulasjon og bildediagnostikk | |
cristin.unitname | Institutt for klinisk og molekylær medisin | |
cristin.unitname | Kreftklinikken | |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.qualitycode | 1 | |