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dc.contributor.authorRøen, Ingebrigt
dc.contributor.authorStifoss-Hanssen, Hans
dc.contributor.authorGrande, Gunn
dc.contributor.authorKaasa, Stein
dc.contributor.authorSand, Kari
dc.contributor.authorKnudsen, Anne Kari
dc.date.accessioned2019-08-27T12:07:50Z
dc.date.available2019-08-27T12:07:50Z
dc.date.created2019-08-22T11:02:08Z
dc.date.issued2019
dc.identifier.citationBMC Palliative Care. 2019, 18 (1), 58-68.nb_NO
dc.identifier.issn1472-684X
dc.identifier.urihttp://hdl.handle.net/11250/2611210
dc.description.abstractAbstract Background: Health care professionals should prevent and relieve suffering in carers of patients with advanced cancer. Despite known positive effects of systematic carer support, carers still do not receive sufficient support. Carers have reported to be less satisfied with coordination of care and involvement of the family in treatment and care decisions than patients. In a rural district of Mid-Norway, cancer palliative care services across specialist and community care were developed. Participants’ experiences and opinions were investigated as part of this development process. Methods: The aim of this qualitative study was to explore and describe health care professionals’ experiences with carer support from their own perspective. Data were collected in focus groups. Purposeful sampling guided the inclusion. Six groups were formed with 21 professionals. The discussions were audio-recorded, transcribed, and analyzed using systematic text condensation. Results: In the analyzis of the focus group discussions, ten categories emerged from the exploration of health care professionals’ carer support, assessment of needs, and factors hampering carer support: 1) dependent on profession, role, and context, 2) personal relationship, 3) personal skills and competence, 4) adjusted to the stage of the disease, 5) informal assessment of carers’ needs, 6) lack of education 7) lack of systems for carer consultations, 8) lack of systems for documentation, 9) lack of systems for involving GPs, and 10) lack of systematic spiritual care. Conclusions: Health care professionals built a personal relationship with the carers as early as possible, to facilitate carer support throughout the disease trajectory. Systematic carer support was hampered by lack of education and system insufficiencies. Organizational changes were needed, including 1) education in carer support, communication, and spiritual care, 2) use of standardized care pathways, including systematic carer needs assessment, 3) systematic involvement of general practitioners, and 4) a system for documentation of clinical work with carers. Keywords: Health care professionals, Oncology, Palliative care, Family carers, Carer support, Needs assessment, Integrationnb_NO
dc.language.isoengnb_NO
dc.publisherBMC (part of Springer Nature)nb_NO
dc.rightsNavngivelse 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.no*
dc.subjectIntegrasjonnb_NO
dc.subjectIntegrationnb_NO
dc.subjectHelsepersonellnb_NO
dc.subjectHealth professionalsnb_NO
dc.subjectPalliasjonnb_NO
dc.subjectPalliative carenb_NO
dc.subjectFamiliestøttenb_NO
dc.subjectFamily supportnb_NO
dc.subjectOncologinb_NO
dc.subjectOncologynb_NO
dc.subjectOmsorgsgiverenb_NO
dc.subjectCaregiversnb_NO
dc.subjectBehovsprøvingnb_NO
dc.subjectNeeds Assessmentnb_NO
dc.titleSupporting carers: health care professionals in need of system improvements and education - a qualitative studynb_NO
dc.typeJournal articlenb_NO
dc.typePeer reviewednb_NO
dc.description.versionpublishedVersionnb_NO
dc.subject.nsiVDP::Onkologi: 762nb_NO
dc.subject.nsiVDP::Oncology: 762nb_NO
dc.source.pagenumber58-68nb_NO
dc.source.volume18nb_NO
dc.source.journalBMC Palliative Carenb_NO
dc.source.issue1nb_NO
dc.identifier.doi10.1186/s12904-019-0444-3
dc.identifier.cristin1717943
dc.description.localcode© The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/)nb_NO
cristin.unitcode194,65,15,0
cristin.unitcode1920,0,0,0
cristin.unitnameInstitutt for klinisk og molekylær medisin
cristin.unitnameSt. Olavs Hospital HF
cristin.ispublishedtrue
cristin.qualitycode1


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