• norsk
    • English
  • English 
    • norsk
    • English
  • Login
View Item 
  •   Home
  • Øvrige samlinger
  • Publikasjoner fra CRIStin - NTNU
  • View Item
  •   Home
  • Øvrige samlinger
  • Publikasjoner fra CRIStin - NTNU
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

Peeking into the black box of privacy - biobank participants on the importance of recognition

Ursin, Lars; Steinsbekk, Kristin Solum
Journal article, Peer reviewed
Thumbnail
View/Open
peeking.pdf (233.1Kb)
URI
http://hdl.handle.net/11250/297885
Date
2012
Metadata
Show full item record
Collections
  • Institutt for samfunnsmedisin og sykepleie [2408]
  • Publikasjoner fra CRIStin - NTNU [26591]
Original version
Norsk Epidemiologi 2012, 21(2):269-276  
Abstract
Biobank research deals with personal information and data from blood and tissue analysis, making the

questions of legitimate recruitment of participants and handling of their data to be intimately connected

with the issue of privacy. Thus, identification of the privacy interests of biobank participants is vital to the

legitimacy of biobank projects. In this article, we ask: How do participants articulate the nature of privacy

issues in biobanking? Here we report from a focus group study on biobank participants’ view of privacy

and consent in relation to biobank research. Based on our analysis, we found that participants viewed

privacy as a concept that describes several dimensions of the fundamental need to be recognized and

respected as an individual and as a person. Interestingly, the needs to be recognized and respected were

also viewed as the basic purpose of biobank consent.
Publisher
NTNU
Journal
Norsk Epidemiologi

Contact Us | Send Feedback

Privacy policy
DSpace software copyright © 2002-2019  DuraSpace

Service from  Unit
 

 

Browse

ArchiveCommunities & CollectionsBy Issue DateAuthorsTitlesSubjectsDocument TypesJournalsThis CollectionBy Issue DateAuthorsTitlesSubjectsDocument TypesJournals

My Account

Login

Statistics

View Usage Statistics

Contact Us | Send Feedback

Privacy policy
DSpace software copyright © 2002-2019  DuraSpace

Service from  Unit