dc.contributor.author | Johansen Skogestad, Ingrid | |
dc.contributor.author | Kirkevold, Marit | |
dc.contributor.author | Larsson, Petra | |
dc.contributor.author | Borge, Christine Råheim | |
dc.contributor.author | Indredavik, Bent | |
dc.contributor.author | Gay, Caryl | |
dc.date.accessioned | 2021-04-28T07:32:48Z | |
dc.date.available | 2021-04-28T07:32:48Z | |
dc.date.created | 2021-04-25T11:11:47Z | |
dc.date.issued | 2021 | |
dc.identifier.citation | Journal of Patient-Reported Outcomes. 2021, 5 (35), . | en_US |
dc.identifier.issn | 2509-8020 | |
dc.identifier.uri | https://hdl.handle.net/11250/2740041 | |
dc.description.abstract | Background
Post-stroke fatigue (PSF) is commonly reported and described as disabling by patients recovering from stroke. However, a major challenge is how to accurately diagnose and assess PSF. Therefore, the aim of this study was to explore PSF as it is experienced by stroke survivors and described by health professionals to guide future development of a PSF-specific PROM.
Methods
Individual semi-structured interviews were conducted with stroke survivors experiencing PSF (n = 9) and three focus groups were conducted with health professionals (n = 16). Data were analyzed through inductive content analysis.
Results
The analysis revealed four themes illustrating the experience and descriptions of PSF: 1) PSF characteristics, 2) interfering and aggravating factors, 3) management, and 4) PSF awareness, which refers to stroke survivors first becoming aware of PSF after their initial hospital admission.
Conclusion
This study highlights the complexity and multidimensionality of PSF. The results from this study will guide future development of a PSF-PROM and support its content validity. | en_US |
dc.language.iso | eng | en_US |
dc.publisher | Springer Nature | en_US |
dc.rights | Navngivelse 4.0 Internasjonal | * |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/deed.no | * |
dc.title | Post-stroke fatigue: an exploratory study with patients and health professionals to develop a patient-reported outcome measure | en_US |
dc.type | Peer reviewed | en_US |
dc.type | Journal article | en_US |
dc.description.version | publishedVersion | en_US |
dc.source.pagenumber | 11 | en_US |
dc.source.volume | 5 | en_US |
dc.source.journal | Journal of Patient-Reported Outcomes | en_US |
dc.source.issue | 35 | en_US |
dc.identifier.doi | 10.1186/s41687-021-00307-z | |
dc.identifier.cristin | 1906239 | |
dc.description.localcode | This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. | en_US |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.qualitycode | 1 | |