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dc.contributor.authorFosså, Sophie Dorothea
dc.contributor.authorDahl, Alv A
dc.contributor.authorLanghammer, Arnulf
dc.contributor.authorWeedon-Fekjær, Harald
dc.date.accessioned2020-06-15T07:15:28Z
dc.date.available2020-06-15T07:15:28Z
dc.date.created2015-12-22T17:29:11Z
dc.date.issued2015
dc.identifier.citationBMC Research Notes. 2015, 8:649 .en_US
dc.identifier.issn1756-0500
dc.identifier.urihttps://hdl.handle.net/11250/2657954
dc.description.abstractBackground:The magnitude of participation bias due to non‑participation should be considered for cancer patients invited to population‑based surveys. We studied participation rates among persons with and without cancer in a large population based study, the Nord‑Trøndelag Health Study (HUNT ).Methods:Citizens 20years or above living in the Nord‑Trøndelag County of Norway have been invited three times to comprehensive health surveys. The invitation files with data on sex, invitation date and participation were linked to the Cancer Registry of Norway. In a first step unadjusted crude participation rates (participants/invited persons) were estimated for cancer patients (CaPts) and non‑cancer persons (NonCaPers), followed by logistic regression analyses with adjustment for age and sex. To evaluate the “practical” significance of the estimated odds ratios in the cancer diagnosis group, relative risks were also estimated comparing the observed rates to the estimated rates under the counterfactual assumption of no earlier cancer diagnosis among CaPts.Results:Overall 3% of the participants in the three HUNT studies were CaPts and 59% of them had been diagnosed with their first life‑time cancer >5years prior to each survey. In each of the three HUNT surveys crude participa‑tion rates were similar for CaPts and NonCaPers. Adjusted for sex and age, CaPts’ likelihood to participate in HUNT1 (1984–86) and HUNT2 (1995–97), but not in HUNT3 (2006–2008), was statistically significantly reduced compared to NonCaPers, equaling a relative risk of 0.98 and 0.96, respectively. The lowest odds ratio emerged for CaPts diagnosed during the last 2years preceding a HUNT invitation. Only one‑third of CaPts participating in a survey also participated in the subsequent survey compared to approximately two‑thirds of NonCaPers, and 11% of CaPts participated in all three HUNT surveys compared to 37% of NonCaPers.Conclusion:In the three HUNT surveys no or only minor participation bias exist as to CaPts’ participation rates. In longitudinal studies selection bias as to long‑term cancer survivorship should be taken into account, the percentage of repeatedly participating CaPts diminishing more strongly than among NonCaPersen_US
dc.language.isoengen_US
dc.publisherBMCen_US
dc.rightsNavngivelse 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.no*
dc.titleCancer patients' participation in population-based health surveys: Findings from the HUNT studies Canceren_US
dc.typePeer revieweden_US
dc.typeJournal articleen_US
dc.description.versionpublishedVersionen_US
dc.source.pagenumber8en_US
dc.source.volume8:649en_US
dc.source.journalBMC Research Notesen_US
dc.identifier.doi10.1186/s13104-015-1635-5
dc.identifier.cristin1303971
dc.description.localcode© 2015 Fosså etal. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stateden_US
cristin.ispublishedtrue
cristin.fulltextoriginal
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