Blar i Institutt for samfunnsmedisin og sykepleie på forfatter "Ursin, Lars Øystein"
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Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Mascalzoni, Deborah; Bentzen, Heidi Beate; Ljøsne, Isabelle Sylvie Budin; Bygrave, Lee Andrew; Bell, Jessica; Dove, Edward S.; Fuchsberger, Christian; Hveem, Kristian; Mayrhofer, Michaela Th.; Meraviglia, Viviana; O'Brien, David R.; Pattaro, Cristian; Pramstaller, Peter P.; Rakic, Vojin; Rossini, Alessandra; Shabani, Mahsa; Svantesson, Dan Jerker B.; Tomasi, Marta; Ursin, Lars Øystein; Wjst, Matthias; Kaye, Jane (Journal article, 2019) -
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research
Goisauf, Melanie; Martin, Gillian; Bentzen, Heidi Beate; Ljøsne, Isabelle Sylvie Budin; Ursin, Lars Øystein; Durnová, Anna; Leitsalu, Liis; Smith, Katharine; Casati, Sara; Lavitrano, Marialuisa; Mascalzoni, Deborah; Boeckhout, Martin; Mayrhofer, Michaela Th. (Journal article; Peer reviewed, 2019)Biobanks have evolved, and their governance procedures have undergone important transformations. Our paper examines this issue by focusing on the perspective of the professionals working in management or scientific roles ... -
European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards
Feeney, Oliver; Werner-Felmayer, Gabriele; Siipi, Helena; Frischhut, Markus; Zullo, Silvia; Barteczko, Ursela; Ursin, Lars Øystein; Linn, Shai; Felzmann, Heike; Krajnovic, Dusanca; Saunders, John; Rakic, Vojin (Journal article, 2019)The effective collection and management of personal data of rapidly migrating populations is important for ensuring adequate healthcare and monitoring of a displaced peoples’ health status. With developments in ICT data ... -
«If you give them your little finger, they’ll tear off your entire arm»: losing trust in biobank research
Ursin, Lars Øystein; Ytterhus, Borgunn; Christensen, Erik; Skolbekken, John-Arne (Peer reviewed; Journal article, 2020)Why do some people withdraw from biobank studies? To our knowledge, very few studies have been done on the reflections of biobank ex-participants. In this article, we report from such a study. 16 years ago, we did focus ... -
Postponed Withholding: Balanced Decision-Making at the Margins of Viability
Syltern, Janicke; Ursin, Lars Øystein; Solberg, Berge; Støen, Ragnhild (Peer reviewed; Journal article, 2021)Advances in neonatology have led to improved survival for periviable infants. Immaturity still carries a high risk of short- and long-term harms, and uncertainty turns provision of life support into an ethical dilemma. ... -
Protect us from ourselves: Balancing the parental instinct of saving
Ursin, Lars Øystein; Syltern, Janicke Marita (Peer reviewed; Journal article, 2019)Background: Neonatologists, legal experts and ethicists extensively discuss the ethical challenges of decision-making when a child is born at the limit of viability. The voices of parents are less heard in this discussion. ... -
We're not in it for the money - lay people's moral intuitions on commercial use of 'their' biobank
Steinsbekk, Kristin Solum; Ursin, Lars Øystein; Skolbekken, John-Arne; Solberg, Berge (Journal article; Peer reviewed, 2013)Great hope has been placed on biobank research as a strategy to improve diagnostics, therapeutics and prevention. It seems to be a common opinion that these goals cannot be reached without the participation of commercial ... -
Withholding Versus Withdrawing Treatment: Why Medical Guidelines Should Omit “Theoretical Equivalence”
Ursin, Lars Øystein (Peer reviewed; Journal article, 2019)