• «If you give them your little finger, they’ll tear off your entire arm»: losing trust in biobank research 

      Ursin, Lars Øystein; Ytterhus, Borgunn; Christensen, Erik; Skolbekken, John-Arne (Peer reviewed; Journal article, 2020)
      Why do some people withdraw from biobank studies? To our knowledge, very few studies have been done on the reflections of biobank ex-participants. In this article, we report from such a study. 16 years ago, we did focus ...
    • Temporal uncertainty in disease diagnosis 

      Hofmann, Bjørn Morten (Peer reviewed; Journal article, 2023)
      There is a profound paradox in modern medical knowledge production: The more we know, the more we know that we (still) do not know. Nowhere is this more visible than in diagnostics and early detection of disease. As we ...
    • The gene-editing of super-ego 

      Hofmann, Bjørn (Journal article; Peer reviewed, 2018)
      New emerging biotechnologies, such as gene editing, vastly extend our ability to alter the human being. This comes together with strong aspirations to improve humans not only physically, but also mentally, morally, and ...
    • The new holism: P4 systems medicine and the medicalization of health and life itself 

      Vogt, Henrik; Hofmann, Bjørn; Getz, Linn Okkenhaug (Journal article; Peer reviewed, 2016)
      The emerging concept of systems medicine (or ‘P4 medicine’—predictive, preventive, personalized and participatory) is at the vanguard of the post-genomic movement towards ‘precision medicine’. It is the medical application ...
    • The overdiagnosis of what? On the relationship between the concepts of overdiagnosis, disease, and diagnosis 

      Hofmann, Bjørn (Journal article; Peer reviewed, 2017)
      Overdiagnosis and disease are related concepts. Widened conceptions of disease increase overdiagnosis and vice versa. This is partly because there is a close and complex relationship between disease and overdiagnosis. In ...
    • We're not in it for the money - lay people's moral intuitions on commercial use of 'their' biobank 

      Steinsbekk, Kristin Solum; Ursin, Lars Øystein; Skolbekken, John-Arne; Solberg, Berge (Journal article; Peer reviewed, 2013)
      Great hope has been placed on biobank research as a strategy to improve diagnostics, therapeutics and prevention. It seems to be a common opinion that these goals cannot be reached without the participation of commercial ...