• Breast Cancer Patients’ Experiences with Information and Communication in Cancer Disease Trajectories 

      Brattheim, Berit J; Sand, Kari; Gilstad, Heidi; Stalsberg, Ragna; Lundgren, Steinar; Reidunsdatter, Randi Johansen (Journal article; Peer reviewed, 2017)
      Patients’ experiences have been used as an indicator for hospital quality for a long time. The concept of patient experiences has many facets. One aspect of particular importance for optimal treatment and patients’ quality ...
    • Cancer patients' knowledge about their disease and treatment before, during and after treatment: a prospective, longitudinal study 

      Berger, Ola; Grønberg, Bjørn Henning; Loge, Jon Håvard; Kaasa, Stein; Sand, Kari (Journal article; Peer reviewed, 2018)
      Background Knowledge about disease and treatment is necessary before patients can consent to treatment. One of the few established instruments for evaluating whether sufficient information has been provided, is the EORTC ...
    • Development of EirV3 - a computer-based tool for patient reported outcome measures in cancer 

      Krogstad, Hilde; Brunelli, Cinzia; Sand, Kari; Andersen, Eivind; Garresori, Herish; Halvorsen, Tarje Onsøien; Haukland, Ellinor Christin; Jordal, Frode; Kaasa, Stein; Loge, Jon Håvard; Løhre, Erik Torbjørn; Raj, Sunil Xavier; Hjermstad, Marianne Jensen (Journal article; Peer reviewed, 2017)
      Purpose Immediate transfer of patient-reported outcome measures (PROMs) for use in medical consultations is facilitated by electronic assessments. We aimed to describe the rationale and development of Eir version 3 (EirV3), ...
    • Eir – web-basert kommunikasjon og symptomhåndtering 

      Sand, Kari; Kaasa, Stein (Journal article, 2014)
      Dataprogrammet Eir skaper nye muligheter til kommunikasjon mellom pasient og helsevesen. Pasienten kan bruke programmet omtrent hvor han vil og informasjonen blir overført til helsepersonalets pc, iPad eller telefon.
    • Informed consent documents for cancer research: Textual and contextual factors of relevance for understanding 

      Sand, Kari (Doktoravhandlinger ved NTNU, 1503-8181; 2012:283, Doctoral thesis, 2012)
      Dersom pasienter eller friske personer er villige til å delta i medisinsk forskning, må de gi sitt informerte samtykke til denne deltakelsen. Informert samtykke innebærer at de har fått grundig informasjon om hva forskningen ...
    • Informing cancer patients 

      Berger, Ola (Doctoral theses at NTNU;2017:129, Doctoral thesis, 2017)
      Norsk sammendrag: Målsetningen med ph.d.-prosjektet var å undersøke pasientinformasjon i kreftbehandling og kreftforskning. Vi tror at resultatene kan brukes i videre arbeid med å forbedre rutiner for pasientinformasjon ...
    • Kartlegging spørsmål fra lhbtiq-ungdom, ung.no 

      Lassemo, Eva; Sand, Kari; Tøndel, Gunhild (SINTEF AS (ISBN starter med 978-82-14-);, Research report, 2020)
      Målet med dette prosjektet var å kartlegge hvordan normbrudd knyttet til seksuell orientering, kjønnsidentitet, kjønnsuttrykk og kjønnskarakteristika er framstilt i spørsmål og redaksjonelt innhold på ung.no. Et utvalg på ...
    • Nutritional experiences in head and neck cancer patients 

      Sandmæl, Jon Arne; Sand, Kari; Bye, Asta; Solheim, Tora Skeidsvoll; Oldervoll, Line Merethe; Helvik, Anne-Sofie (Journal article; Peer reviewed, 2019)
      Objective Extensive research has documented the negative nutritional impact of head neck cancer (HNC) treatment, but few studies have addressed the patients' experiences. The purpose of this study was to describe how ...
    • Online Patient Information about Breast Cancer – A Discourse Analysis 

      Gilstad, Heidi; Sand, Kari; Brattheim, Berit J (Journal article; Peer reviewed, 2017)
      Adequate information is crucial for patient participation in health trajectories. The objective of this study is to analyse how online health information about cancer is organised and presented. Updated information about ...
    • Patient interpretation of the Patient-Generated Subjective Global Assessment (PG-SGA) Short Form 

      Balstad, Trude Rakel; Bye, Asta; Jenssen, Cathrine Ragna Solheim; Solheim, Tora Skeidsvoll; Thoresen, Lene; Sand, Kari (Journal article; Peer reviewed, 2019)
      Background: The Patient-Generated Subjective Global Assessment (PG-SGA) is a patient-reported instrument for assessment of nutrition status in patients with cancer. Despite thorough validation of PG-SGA, little has been ...
    • Patient interpretation of the Patient-Generated Subjective Global Assessment (PG-SGA) Short Form 

      Balstad, Trude Rakel; Bye, Asta; Jenssen, Cathrine Ragna Solheim; Solheim, Tora Skeidsvoll; Thoresen, Lene; Sand, Kari (Journal article; Peer reviewed, 2019)
      Background:The Patient-Generated Subjective Global Assessment (PG-SGA) is a patient-reported instrument for assessment of nutrition status in patients with cancer. Despitethorough validation of PG-SGA, little has been ...
    • Resilience for family carers of advanced cancer patients-how can health care providers contribute? A qualitative interview study with carers. 

      Røen, Ingebrigt; Stifoss-Hanssen, Hans; Grande, Gunn; Brenne, Anne-Tove; Kaasa, Stein; Sand, Kari; Knudsen, Anne Kari (Journal article; Peer reviewed, 2018)
      Background: Caring for advanced cancer patients affects carers’ psychological and physical health. Resilience has been defined as “the process of adapting well in the face of adversity, trauma, tragedy, threats or even ...
    • Supporting carers: health care professionals in need of system improvements and education - a qualitative study 

      Røen, Ingebrigt; Stifoss-Hanssen, Hans; Grande, Gunn; Kaasa, Stein; Sand, Kari; Knudsen, Anne Kari (Journal article; Peer reviewed, 2019)
      Abstract Background: Health care professionals should prevent and relieve suffering in carers of patients with advanced cancer. Despite known positive effects of systematic carer support, carers still do not receive ...
    • Usability testing of EirV3-a computer-based tool for patient-reported outcome measures in cancer 

      Krogstad, Hilde; Sundt-Hansen, Stine Marie; Hjermstad, Marianne Jensen; Hågensen, Liv Ågot; Kaasa, Stein; Loge, Jon Håvard; Raj, Sunil Xavier; Steinsbekk, Aslak; Sand, Kari (Journal article, 2018)
      Purpose Eir version 3 (V3) is an electronic tool for administration of patient-reported outcome measures (Eir-Patient) that immediately presents patient scores on the physician’s computer (Eir-Doctor). Perceived usability ...