Browsing NTNU Open by Journals "Medicine, Health care and Philosophy"
Now showing items 1-8 of 8
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«If you give them your little finger, they’ll tear off your entire arm»: losing trust in biobank research
(Peer reviewed; Journal article, 2020)Why do some people withdraw from biobank studies? To our knowledge, very few studies have been done on the reflections of biobank ex-participants. In this article, we report from such a study. 16 years ago, we did focus ... -
Openness and trust in data-intensive science: the case of biocuration
(Peer reviewed; Journal article, 2020)Data-intensive science comes with increased risks concerning quality and reliability of data, and while trust in science has traditionally been framed as a matter of scientists being expected to adhere to certain technical ... -
Relational autonomy in the care of the vulnerable: Health care professionals' reasoning in Moral Case Deliberation (MCD)
(Journal article; Peer reviewed, 2017)In Moral Case Deliberation (MCD), healthcare professionals discuss ethically difficult patient situations in their daily practice. There is a lack of knowledge regarding the content of MCD and there is a need to shed light ... -
Temporal uncertainty in disease diagnosis
(Peer reviewed; Journal article, 2023)There is a profound paradox in modern medical knowledge production: The more we know, the more we know that we (still) do not know. Nowhere is this more visible than in diagnostics and early detection of disease. As we ... -
The gene-editing of super-ego
(Journal article; Peer reviewed, 2018)New emerging biotechnologies, such as gene editing, vastly extend our ability to alter the human being. This comes together with strong aspirations to improve humans not only physically, but also mentally, morally, and ... -
The new holism: P4 systems medicine and the medicalization of health and life itself
(Journal article; Peer reviewed, 2016)The emerging concept of systems medicine (or ‘P4 medicine’—predictive, preventive, personalized and participatory) is at the vanguard of the post-genomic movement towards ‘precision medicine’. It is the medical application ... -
The overdiagnosis of what? On the relationship between the concepts of overdiagnosis, disease, and diagnosis
(Journal article; Peer reviewed, 2017)Overdiagnosis and disease are related concepts. Widened conceptions of disease increase overdiagnosis and vice versa. This is partly because there is a close and complex relationship between disease and overdiagnosis. In ... -
We're not in it for the money - lay people's moral intuitions on commercial use of 'their' biobank
(Journal article; Peer reviewed, 2013)Great hope has been placed on biobank research as a strategy to improve diagnostics, therapeutics and prevention. It seems to be a common opinion that these goals cannot be reached without the participation of commercial ...