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dc.contributor.authorUrsin, Lars
dc.contributor.authorSyltern, Janicke Marita
dc.date.accessioned2020-02-05T11:11:48Z
dc.date.available2020-02-05T11:11:48Z
dc.date.created2018-05-30T11:10:45Z
dc.date.issued2018
dc.identifier.citationPediatrics. 2018, 142 S567-S573.nb_NO
dc.identifier.issn0031-4005
dc.identifier.urihttp://hdl.handle.net/11250/2639779
dc.description.abstractOBJECTIVES: The role of parents in life-and-death decision-making for infants born at the border of viability is challenging. Some argue that parents should have the final say in decisions about life-sustaining treatment. Others disagree. In this article, we report views from health care personnel (HCP) on the appropriate parental role. METHODS: Focus group interviews with 5 different groups of HCP (neonatal nurses, midwifes, obstetricians, mother-fetal specialists, and neonatologists) dealing with life-and-death decisions throughout pregnancy and birth were performed at the Norwegian University of Science and Technology and at St Olav’s Hospital in Trondheim, Norway in 2014–2017. Interviews were taped and transcribed. Inductive analysis was performed for each group discussion for emergent ethical themes. A summary of the transcribed discussion was sent to the relevant focus group participants for comments. RESULTS: Our participants felt strongly that doctors, not parents, should have the final say. They did not think parents should have to live with the burden of the decision. The possible disagreement between parents, lack of necessary knowledge, experience, time, and emotional stability all point toward the neonatologist as the optimal decision-maker, within a model of “Patient Preference–Satisfaction Paternalism.” CONCLUSIONS: The general attitude of our groups was that parents should have a say and be included in a thorough information and decision-making process. The doctor, or a team of HCP, however, should make the final decision, being in the best position both epistemologically and normatively to promote the best interest of both parents and the child.nb_NO
dc.language.isoengnb_NO
dc.publisherAmerican Academy of Pediatricsnb_NO
dc.titleIn the best interest of the. . .parents: Norwegian health personnel on the proper role of parents in neonatal decision-makingnb_NO
dc.typeJournal articlenb_NO
dc.typePeer reviewednb_NO
dc.description.versionpublishedVersionnb_NO
dc.source.pagenumberS567-S573nb_NO
dc.source.volume142nb_NO
dc.source.journalPediatricsnb_NO
dc.identifier.doi10.1542/peds.2018-0478H
dc.identifier.cristin1587631
dc.relation.projectRegionalt helseforetak: 46056621nb_NO
dc.description.localcodeThis article will not be available due to copyright restrictions (c) 2018 by American Academy of Pediatricsnb_NO
cristin.unitcode194,65,20,0
cristin.unitcode1920,1,0,0
cristin.unitnameInstitutt for samfunnsmedisin og sykepleie
cristin.unitnameBarne- og ungdomsklinikken
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.qualitycode2


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