Blar i Institutt for filosofi og religionsvitenskap på forfatter "Skolbekken, John-Arne"
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«If you give them your little finger, they’ll tear off your entire arm»: losing trust in biobank research
Ursin, Lars Øystein; Ytterhus, Borgunn; Christensen, Erik; Skolbekken, John-Arne (Peer reviewed; Journal article, 2020)Why do some people withdraw from biobank studies? To our knowledge, very few studies have been done on the reflections of biobank ex-participants. In this article, we report from such a study. 16 years ago, we did focus ... -
We're not in it for the money - lay people's moral intuitions on commercial use of 'their' biobank
Steinsbekk, Kristin Solum; Ursin, Lars Øystein; Skolbekken, John-Arne; Solberg, Berge (Journal article; Peer reviewed, 2013)Great hope has been placed on biobank research as a strategy to improve diagnostics, therapeutics and prevention. It seems to be a common opinion that these goals cannot be reached without the participation of commercial ...