Browsing NTNU Open by Author "Steinsbekk, Kristin Solum"
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Managing incidental findings in population based biobank research :
Solberg, Berge; Steinsbekk, Kristin Solum (Journal article; Peer reviewed, 2012)With the introduction of whole genome sequencing in medical research, the debate on how to handle incidental findings is becoming omnipresent. Much of the literature on the topic so far, seems to defend the researcher’s ... -
Peeking into the black box of privacy - biobank participants on the importance of recognition
Ursin, Lars; Steinsbekk, Kristin Solum (Journal article; Peer reviewed, 2012)Biobank research deals with personal information and data from blood and tissue analysis, making the questions of legitimate recruitment of participants and handling of their data to be intimately connected with the issue ... -
We're not in it for the money - lay people's moral intuitions on commercial use of 'their' biobank
Steinsbekk, Kristin Solum; Ursin, Lars Øystein; Skolbekken, John-Arne; Solberg, Berge (Journal article; Peer reviewed, 2013)Great hope has been placed on biobank research as a strategy to improve diagnostics, therapeutics and prevention. It seems to be a common opinion that these goals cannot be reached without the participation of commercial ...