An increasing number of European research projects return, or plan to return, individual genomic research results (IRR) to participants. While data access is a data subject’s right under the General Data Protection Regulation ...

Sortering av liv? Etiske hensyn ved å lage barn med og uten genetisk risikoinformasjon. ”Sorteringssamfunnet” er et særnorsk begrep som ofte blir benyttet når etiske sider ved bruk av fosterdiagnostikk og ultralyd i ...

Great hope has been placed on biobank research as a strategy to improve diagnostics, therapeutics and prevention. It seems to be a common opinion that these goals cannot be reached without the participation of commercial ...

Rosamond Rhodes and John Harris have both recently argued that we all have a general moral duty to participate in medical research. However, neither Rhodes’ nor Harris’ arguments in support of this obligation stand up to ...